Sanfilippo Syndrome (MPS III)

Ok, I have come across another disease that I feel I should pass along awareness to others. It is called Sanfilippo Syndrome (MPS III). I was reading ABC News again and came across a story about a little girl named Caitlin. She has this disease and her parents have been told she will most likely not live past the age of 12. It affect 1 in 25,000 children and there is not treatment and cannot be slowed down by any means either. These children are missing a special enzyme that breaks down a complex body sugar called heparin sulfate. Caitlin is a 3 year old girl who has this disease that will eventually lead to hyperactivity, sleep disorders, mental retardation, dementia & then death. The website I am about to post tells her story. Her mother has quit her job to be her caregiver and her father continues to work. The family is however planning several different vacations and trips to show Caitlin a good time before she loses her memory and ability to do anything. Please take a minute to read her story.

http://caitlinsdream.com/